Columnist Helen Baldwin pays tribute to a late member of the SMA community whose positive impact on the world is immeasurable ...

The European Commission has given approval to a high-dose regimen of Spinraza (nusinersen) for people with 5q spinal muscular ...

A Google spreadsheet helps columnist Connie Chandler set the schedule for her caregiving team, who provide her with ...

A study tested 38 children with SMA who took part in an eight-week breathing exercise program, with some also engaging their ...

Finding medical providers who will work with her public health insurance has proven to be a challenge, says columnist.

A small molecule known as 10H-phenothiazine reduced the loss of motor neurons, the nerve cells that are lost in SMA, in ...