Batten Disease – Vision & Brain Loss #dnasequencing #rarediseases #pediatric #science #humanbiology
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Batten Disease – Vision & Brain Loss #dnasequencing #rarediseases #pediatric #science #humanbiology
169 views3 months ago
YouTubeComputational GenomeBiology
Batten Disease: The Diagnostic Journey
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Batten Disease: The Diagnostic Journey
329 viewsNov 11, 2021
YouTubeBDSRA Foundation
Batten disease ( Juvenile Neuronal Ceroid Lipofuscinosis)
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Batten disease ( Juvenile Neuronal Ceroid Lipofuscinosis)
77 views5 months ago
YouTubeDr. Harinder Sandhu
What If We Could Understand Batten Disease Progression?
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What If We Could Understand Batten Disease Progression?
1.7K viewsFeb 7, 2025
YouTubeDel Monte Institute for Neuroscience
Understanding Rett Syndrome and Batten Disease
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Understanding Rett Syndrome and Batten Disease
9.1K views4 months ago
TikTokdicky.doemexz
Understanding Batten Disease and Its Impact on Families
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Understanding Batten Disease and Its Impact on Families
29.7K views3 months ago
TikTok.amandadenise
Understanding Batten Disease Through Charli's Journey
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Understanding Batten Disease Through Charli's Journey
2.8K views5 months ago
TikTokhopeforcharlipearl
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Batten Disease is a rare, terminal neurodegenerative condition that severely impacts children and young people. It’s heartbreaking, and I want to thank the Batten Disease Family Association for their tireless support of families facing this cruel disease. | Ed Davey
2K views11 months ago
FacebookEd Davey
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Never thought I’d have to endure this deep pain as a parent. Nothing could’ve prepared me for this. 💔😭 • • #battendisease #fightforacure #raredisease #fyp #medicallycomplex | Briggs & Brody’s battle with Batten Disease CLN2
13.8K views6 months ago
FacebookBriggs & Brody’s battle with Batten Disease CLN2
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Her childhood was ripped to shreds by a fatal diagnosis. Batten Disease. My motherhood was changed in an instant. Help us be heard and follow this sweet girl to oblivion and beyond🩷 #lovetoemma #battendisease #raredisease #parentingrare #specialneeds #medicalmom #CURE #CLN2 #betheirvoice | Love to Emma - Beating Batten
9.6K views5 months ago
FacebookLove to Emma - Beating Batten
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For the last month or so we’ve been fighting to help Isaac with his movement disorder & dystonia, and now to make things worse he’s not able to sleep for more than a few hours at a time. Night times are the worst and hardest - for all of us. I’m really struggling watching Isaac like this. He’s my baby, the boy you see in the first photos is who is still in there, he still wants to run through the leaves, to ride his bike, to hold his sisters hand.. but his body is letting him down. This movement
502K views4 months ago
FacebookIsaac’s Journey fighting Batten Disease
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Charlotte just turned five. It's expected she will only live until 14, at most. She was diagnosed with Battens Disease CLN2 - an incredibly rare terminal condition which causes the neurological system to decline over time - also known as Childhood Dementia. Her family is making the most of every day they have with her, while spreading awareness on the cruel disease. To learn more, visit https://m.youtube.com/watch?v=JSEH0OIeK9I&feature=youtu.be or the News Section of our website. #AlwaysCare #Ba
58K views4 months ago
FacebookGold Coast Health
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Understanding Batten Disease: Genetic Testing Insights
8.7M views8 months ago
TikTokwhatif.itsizzy
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Understanding Sanfilippo and Batten Disease
Nov 19, 2024
TikTokwhatif.itsizzy
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Feeling incredbly loved by all those around us 🧡Here are just a few pictures we managed to caputure on Batten Disease Awareness Day 2025. A massive thank you to everyone who got involved and helped to raise awareness of such a rare yet devastating condtion. A huge thank you especially to our local community for once again turning our village orange, by doing this we know that questions will be asked as to why everywhere is decorated orange and this in turn will start converations regarding Batt
10.2K views11 months ago
FacebookOllie's Army Battling Against Battens
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Batten Disease: How a Batten Mother helps give back to the BDSRA Foundation
1.5K views5 months ago
YouTubeBDSRA Foundation
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Understanding Batten Disease Progression and Variants
31.2K views11 months ago
TikTokwhatif.itsizzy
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Batten Disease: What the Annual Family Conference means
329 views5 months ago
YouTubeBDSRA Foundation
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Rare Disease Week 2026 | Batten Disease Advocacy in California
167 views2 months ago
YouTubeBDSRA Foundation
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Today is International Batten Disease Awareness Day 🧡 This means that families all over the world will be raising awareness of a disease which affects children and young adults. Batten Disease has no cure and is always fatal. Help us to create awareness by interacting and sharing our posts 🧡 We are super proud of our little girl, she was born into a world of rare disease. At three years old she is already advocating for her brother and sister who are affected by this horrific disease 💔 Batten
7.1K viewsJun 9, 2023
FacebookOllie's Army Battling Against Battens
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