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1:29
TikTok
saving_liv
Understanding Sanfilippo Syndrome with Liv
Learn about Sanfilippo Syndrome, a rare neurodegenerative genetic disorder, and its impact. Liv's story offers a glimpse into living with this condition. Saving Liv(@saving_liv). original sound - Saving Liv. Sanfilippo Syndrome is a neuro degenerative terminal genetic disorder. Before you rush to the comments, Liv has almost no understanding of ...
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Sanfilippo Syndrome is a degenerative terminal genetic disorder, with a life expectancy of 12-20. It is caused by a single missing enzyme, that breaks down a cellular waste product called heparan sulfate. So that accumulates and causes damage to all the cells in Liv’s body. #sanfilipposyndrome #fyp #cold #virus #sickness
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