Tackling rare diseases through the European Reference Networks (ERNs)
Tackling rare diseases through the European Reference Networks (ERNs)
Feb 28, 2023
europa.eu
European Collaboration for Rare Disease Care and Quality of Life | ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases) posted on the topic | LinkedIn
European Collaboration for Rare Disease Care and Quality of Life | ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases) posted on the topic | LinkedIn
2.2K views1 month ago
linkedin.com
European Reference Networks for rare and complex diseases
1:34
European Reference Networks for rare and complex diseases
459 viewsAug 16, 2018
YouTubeEuropean Commission
Assessing the Implementation of Patient Partnership in the European Reference Networks
1:45
Assessing the Implementation of Patient Partnership in the European Reference Networks
60 viewsMar 19, 2025
YouTubeeurordis
Patient Partnership Framework for the European Reference Networks (ERNs)
2:43
Patient Partnership Framework for the European Reference Networks (ERNs)
14 views3 months ago
YouTubeeurordis
European Reference Networks and European Advocacy Patient Groups - 101
14:59
European Reference Networks and European Advocacy Patient Groups - 101
763 viewsApr 12, 2022
YouTubeeurordis
European Patient Advocacy Groups (ePAGs)
European Patient Advocacy Groups (ePAGs)
Aug 5, 2022
eurordis.org
Introducing European Reference Networks
3:01
Introducing European Reference Networks
62 viewsFeb 22, 2023
YouTubeEndo-ERN
ERN Animation Video
3:01
ERN Animation Video
947 viewsMar 20, 2019
YouTubeMetabERN
how the European Reference Networks support health professionals
7:05
how the European Reference Networks support health professionals
6 viewsFeb 4, 2021
VimeoEURACAN
The Journey of European Reference Networks
30:00
The Journey of European Reference Networks
20 viewsJun 3, 2024
YouTubeeurordis
Réseaux Européens de Référence : 5 questions au Dr Fernand Pauly
6:00
Réseaux Européens de Référence : 5 questions au Dr Fernand Pauly
472 viewsFeb 25, 2022
YouTubeCHL Luxembourg
We are excited to announce the winners of the 2025 Patient Partnership Good Practice Challenge! 🎉 This initiative aims to foster peer learning on patient partnership in the European Reference Networks (ERNs) by showcasing outstanding examples of collaboration between patient representatives and healthcare professionals involved the Networks. After the evaluation by a Selection Committee, three practices have won the challenge: 💡 ERN-LUNG - European Reference Network for rare respiratory diseas
0:05
We are excited to announce the winners of the 2025 Patient Partnership Good Practice Challenge! 🎉 This initiative aims to foster peer learning on patient partnership in the European Reference Networks (ERNs) by showcasing outstanding examples of collaboration between patient representatives and healthcare professionals involved the Networks. After the evaluation by a Selection Committee, three practices have won the challenge: 💡 ERN-LUNG - European Reference Network for rare respiratory diseas
128 viewsMar 2, 2025
FacebookEURORDIS-Rare Diseases Europe
Patient Partnership Webinar - Unlocking ERN Potential: Disease Specific Measures
1:32:16
Patient Partnership Webinar - Unlocking ERN Potential: Disease Specific Measures
66 viewsJul 25, 2024
YouTubeeurordis
ERNs on Air: The role of patient advocates
12:13
ERNs on Air: The role of patient advocates
9 viewsJun 3, 2024
YouTubeeurordis
European Reference Networks: hands-on guidance for the first call
1:37:20
European Reference Networks: hands-on guidance for the first call
67 viewsApr 12, 2016
YouTubeeurordis
🎧 A new episode of ERNs on Air is now live! Join Ines Hernando from the EURORDIS ERNs & Healthcare team in conversation with Olivia Spivack, researcher and ERN Implementation Coordinator at ERN ERNICA, and Mirthe Klein Haneveld, researcher and member of the ERN ITHACA guideline working group. Together, they dive into the Patient Partnership Framework for the European Reference Networks (ERNs) – exploring why it was created, how it works in practice, and what it takes to build genuine collaborat
0:22
🎧 A new episode of ERNs on Air is now live! Join Ines Hernando from the EURORDIS ERNs & Healthcare team in conversation with Olivia Spivack, researcher and ERN Implementation Coordinator at ERN ERNICA, and Mirthe Klein Haneveld, researcher and member of the ERN ITHACA guideline working group. Together, they dive into the Patient Partnership Framework for the European Reference Networks (ERNs) – exploring why it was created, how it works in practice, and what it takes to build genuine collaborat
193 views4 months ago
FacebookEURORDIS-Rare Diseases Europe
Victoria Hedley explains the role of National Mirror Groups in the rare disease research ecosystem
12:33
Victoria Hedley explains the role of National Mirror Groups in the rare disease research ecosystem
145 views1 month ago
YouTubeERDERA
Welcome Package for European Patient Advocacy Group advocates in the European Reference Networks
3:27
Welcome Package for European Patient Advocacy Group advocates in the European Reference Networks
16 views6 months ago
YouTubeeurordis
Webinar: ERTC symposium European Reference Networks
57:40
Webinar: ERTC symposium European Reference Networks
123 viewsSep 21, 2017
YouTubeeurordis
Webinar: A data strategy for the European Reference Networks
1:24:40
Webinar: A data strategy for the European Reference Networks
174 viewsJun 19, 2020
YouTubeeurordis
ERN-EuroBloodNet Thursdays Webinars - Diagnosis and Clinical management of rare forms of...
43:30
ERN-EuroBloodNet Thursdays Webinars - Diagnosis and Clinical management of rare forms of...
158 viewsDec 27, 2024
YouTubeERN-EuroBloodNet's EDU
HLM Rare 2025: Day 2 (10 December) - Part 3/4
1:53:41
HLM Rare 2025: Day 2 (10 December) - Part 3/4
20 views3 months ago
YouTubeBRAINS FOR BRAIN FOUNDATION
ERN testimonial - The story of Jasper (Dutch subtitles)
4:16
ERN testimonial - The story of Jasper (Dutch subtitles)
689 viewsOct 30, 2017
YouTubeVASCERN ERN
Common European Framework of Reference
Common European Framework of Reference
Oct 16, 2017
weebly.com
PhEur Reference Standards | Pharmaceutical Technology
PhEur Reference Standards | Pharmaceutical Technology
Oct 1, 2013
pharmtech.com
EU Reference Laboratory for alternatives to animal testing (EURL ECVAM)
EU Reference Laboratory for alternatives to animal testing (EURL ECVAM)
Mar 30, 2025
europa.eu
4 Polycysteuze leverziekte Wat zijn veel voorkomende symptomen
1:19
4 Polycysteuze leverziekte Wat zijn veel voorkomende symptomen
3.7K viewsJul 2, 2020
YouTubeNederlandse Leverpatiënten Vereniging
ERN videoclip (subtitles in all languages )
1:34
ERN videoclip (subtitles in all languages )
525 viewsOct 30, 2017
YouTubeVASCERN ERN
Galileo Reference Centre
Galileo Reference Centre
Apr 23, 2024
europa.eu
See more